January 24, 2025 – Visual Snow Syndrome (VSS) has now been officially recognized with a unique code in the eleventh edition of the International Classification of Diseases (ICD-11) by the World Health Organization (WHO). This significant milestone is the result of collaborative efforts by the Visual Snow Initiative (VSI), led by founder Sierra Domb, in partnership with prominent neurologists such as Dr. Peter Goadsby and Dr. Owen White.
The assignment of an ICD code to VSS has far-reaching positive implications for both patients and the global medical community. It acknowledges VSS as a legitimate neurological disorder, which will enhance the accuracy of diagnosis and treatment. Furthermore, this recognition enables healthcare services related to VSS to become eligible for insurance coverage and financial support. It will also stimulate further research into VSS, potentially leading to better treatment methods and a deeper understanding of the condition.
Beginning in 2025, Visual Snow Syndrome and its associated symptom, Visual Snow, will be officially included in the ICD-11. This acknowledgment marks a turning point for everyone affected by VSS and offers hope for improved care and understanding in the future.